Well, I took Claire to the retina specialist at the University of Colorado eye center. Dr. Mandeva was a specialist that looked at Claire and the news he had to give us similar to that of Dr. Curtis from the Childrens Hospital. He definitely saw crystals in the back of Claire's eyes on the retina. He was very caring and concerned about Claire's condition. It's so hard to tell in a baby how well she can really see, but he believes she already has significant vision loss. He said if he was looking into Claire's eyes and she could tell him how well she could see, she would probably say she could see about 8 feet in front of her and could possibly read with magnification. Now that was just his guess and who really knows if Claire can see much better or much worse than that currently. Now just because he says that doesn't mean I agree. I honestly don't have any concerns with Claire's vision right now. She seems to see very very well. She can see a cheerio on the ground and also seems to see quite good distance as well. I pray that heavenly father will protect and pick preserve Claire's vision. Dr. Mandeva also said that over time, her vision will only get worse, so as long as the oxalate stays in her body. And right now, the dialysis and the B6 vitamin are the only things that will get the oxalate out, other than a transplant. We will increase Claire's peritoneal dialysis to 14 hours at night and also do some daytime dialysis exchanges to ensure we are doing all we can to preserve Claire's health. Miracle girl…perfect eyes!
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