One of the few quiet moments today.
Today was not an easy going kind of day. Benson came to dialysis again with Claire and I and it was busy (to say the least). They were both demanding, clingy to their mommy, and needed lots of attention. It was a long three hours and we were all ready to get outta there!
But the fun didn’t stop there. Claire had an eye appointment at 1:45 and x-rays scheduled of her hands, legs, and pelvis after that. If you haven’t been to one lately, eye appointments are NEVER short. She's had a plugged tear duct in her left eye since birth and it hasn't ever opened. We tried to get the surgery done to probe it open in Colorado but they couldn't get her in before we left. Here, they're booked out till November. The doctor said since she was already active on the waiting list, he'd prefer waiting till after the transplant to do the surgery. And so that is that. We'll wait till after transplant. Two hours later, we headed for the x-rays.
Claire really doesn't like that room. The fact that they make ME put on the big, scary vest is most traumatizing for her. Her one source of comfort, protection, and security suddenly becomes “one of them.” Now who's going to protect me, she screams! We strap her down for the pelvis and legs, and hold her hand under a thin plastic sheet for the hands and get it done just as quickly as possible. ALL DA DA, is her way of saying All DONE! Yes, finally all done.
Three days up.
1 comment:
Natalie, I would say "All Da Da" too! She's such an amazing little girl!! It's hard to believe that a little spirit could teach us so much about living and enduring happily while she is fighting this/these diseases. I'm so happy for your family to be activated. Yes, it's nerve-racking, but what an amazing blessing that your quality of life and Claire's life could be improved 10-FOLD with this transplant/these transplants. Will she get both the kidney and liver or just the kidney? We're here and we're praying. We love you guys and we're cheering you on. We know Heavenly Father will continue to sustain you.
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